This study, funded by the Foundation for Women’s Cancer, is investigating how to help people who have been diagnosed with Hereditary Breast and Ovarian Cancer (HBOC) or Lynch syndrome share their genetic test results with family members, and how to help those family members make decisions
Participating in this study is free and will help study investigators from around Texas understand how to support families with HBOC or Lynch syndrome.
After you enroll in this study, you and your family members who enroll are sorted into four groups. One group will receive more information about genetic testing in a letter, one group will have the chance to receive free genetic counseling and testing, one group will get access to the IGNITE-TX educational website, and one group will get access to the website and free genetic counseling and testing.
You will be sent surveys at the start of the study and at 6- and 12-month follow-up. The surveys are designed to take 15 minutes to complete.
You will receive more information about this study during the informed consent process.
To enroll in this study, go to the home page and click the “Start Here” button. You will be taken to a secure website where you will complete survey questions to confirm you are eligible. If you have had genetic testing for a cancer syndrome, have your test results with you when you complete this survey.
- Adults (18 years or older) from Texas who have been diagnosed with an inherited cancer syndrome (Hereditary Breast and Ovarian Cancer syndrome or Lynch syndrome) and who have at least one adult, living, first degree relative (parent, sibling, or child) that has NOT yet had genetic testing.
- Adult first-degree relatives (parents, siblings, or children) of the person who has been diagnosed with Hereditary Breast and Ovarian Cancer syndrome or Lynch syndrome are also eligible. These relatives are eligible if they have not yet had genetic testing. They must live in one of the 50 United States.
- All participants must have access to the internet (on a computer or their phone).
Participants will complete a baseline and follow-up surveys that are sent to your email or phone. Participants will be offered a $10 gift card for each survey they complete (up to $30).
Also, as part of this study you and your family will have the chance of receiving education and support regarding genetic testing, the chance to have genetic testing and counseling paid for, and the chance to receive access to the IGNITE-TX educational website.
There is no requirement for relatives to get genetic testing. Participants who have not yet had genetic testing will be encouraged to consider genetic counseling and testing.